Hello everyone,
First off thank you for having me on this App.
My name is Matthew Newsham and I run FND Lancashire CIC. This is a new charity in which I am setting up with a leading consultant from Lancashire with a keen interest in FND.
We have been working on putting it together over the last 4 months or so and we will be looking to launch toward back end of 2024 / early stages of 2025.
I have worked with FND Action over the last few years aswell, but know looking to branch off with a keen interest in helping those in the north of England.
I was dognosed with FND back in 2019, I have spent a lot of time researching the condition and looking at the lack of support for patients.
Hope this post is okay. I’ll try and keep up with your all.
Many Thanks
Matthew
Hi Matthew
There are a few people within this community with FND and I’m sure they would like to hear the results of your research any time you would like to share.
Thank you
Myra
I’m sure there will be a few people on here that will be very interested in your support Matthew and hearing about your research.
Hi Matthew,
Not only is it okay to post about your CIC on here, I’d encourage it.
The forum is all about disability inclusion.
Being in Manchester, am I out of your catchment area?
Within the wider groups All4Inclusion have we have quite a few people with FND
On here there is @Catherine Deegan and @victoriajdavies0
There may be more too.
If as part of you CIC you want somewhere to use as a focus group etc…… there is the function to have locked forums on here
We currently have an accessible housing forum working here which is just starting